Dates to Remember

Sunday September 10, 2017

International PBC Day

Wednesday February 28, 2018

Canadian Rare Disease Day

PBC is a rare disease. One in 10,000 people in Canada have PBC. Make sure our voices are heard in Ottawa and provincial legislatures across Canada.

Thursday March 1, 2018

Nutrition Month – March

Good nutrition is essential in living with PBC. Find out about healthy eating that is right for you.

Sunday April 22, 2018

National Organ Donor Week – April 22 – 29

PBC if left untreated may result in the need for a liver transplant.

  • PBC Research

    • First new PBC treatment in 20 years approved!
      The Canadian PBC Society is excited to share that a new treatment option for PBC is on it’s way, thanks to the recent Canadian conditional approval of obeticholic acid, otherwise known as Ocaliva, or [more]
    • New Canadian PBC Patient Registry
      In 2016, we designated the proceeds of the Canadian PBC Society’s signature fundraising event, A Day at the Races, to support PBC education, awareness and research at the Toronto Centre for Liver [more]
    • New European Guidelines for PBC Diagnosis and Treatment
      In March 2017 New European Guidelines for PBC Diagnosis and Treatment were published. We are very excited that these guidelines include ensuring that patients have access to PBC Patient Support [more]
    • PBC Prevalence Study released
      See the first Canadian PBC Prevalence study published March, 2017. The objectives of this study were to estimate and characterize the PBC population and associated PBC liver transplant recipients [more]
    • Rare Disease Day – Focus on Research
      Congratulations to the 2017 recipient of our Outstanding PBC Research Award – Dr. Andrew Mason, Co-Director of the Centre for Excellence for Gastrointestinal Inflammation & Immunity [more]
  • PBC Blog

    • PBC in Men Uncommon – Read Carey’s Story
      This is the last of four PBC Profiles that will appear in the National Post Patient Diaries Series. One of the best ways to raise awareness about PBC is to get our stories told, leading to early [more]
    • Cross Canada making our voices heard -PBC Advocacy
      Starting in Halifax in May, 2017, the Canadian PBC Society met with government health policy experts, decision-makers, medical professionals, and PBC patients and their families to talk about the [more]
    • Telling our stories to Raise PBC Awareness
      This is the third of four PBC Profiles that will appear in the National Post Patient Diaries Series. One of the best ways to raise awareness about PBC is to get our stories told, leading to early [more]
    • In Memoriam
      It is with great sadness that we announce the passing of Maureen Hill. Many of you will remember Maureen as an active member of our Edmonton group. We will miss Maureen’s warm and caring nature.[more]
    • Mother’s Day Self Management Workshop- Toronto
      On Sunday, May 14, 2017 the Canadian PBC Society held a PBC Self Management Workshop in Toronto for 16 participants, facilitated by Anne Hartford, MSW, was a great success. See some of our photos now.[more]
    • Halifax PBC Dinner/Speaker Meeting
      On May 9, 2017, Dr Magnus MacLeod, Assistant Professor at Dalhousie University, talked to a group of 30 PBC patients and their guests about the latest in PBC Diagnosis, Treatment and Research. See [more]
    • Regional Coordinator News
      April 28-30, 2017 we held our first Regional Coordinators Meeting in Toronto. It was great to see representatives from across the country gather together to discuss how to better support our growing [more]
    • Creating PBC Awareness through telling our stories
      Members of the Canadian PBC Society were interviewed by Post Media for a series of articles about living with PBC. This is the second of four PBC profiles that will appear in the National Post [more]
    • Toronto PBC Dinner/Speaker Meeting
      On International Women’s Day – March 8, 2017 a group of 60 people met in Toronto to hear about the latest in PBC Diagnosis, Treatment and Research. Thank you to presenters: Dr. Aliya [more]
    • International Women’s Day
      Canadian PBC Society recognized International Women’s Day at our PBC dinner meeting held on March 8th, 2017 featuring speakers, Dr. Aliyah Gulamhusein and Dr. Bettina Hansen accomplished [more]
  • Leslie K

    November 18 is my liver-versary. On that date in 2015, I received the gift of life in the form of a gently used liver from a courageous stranger who has become my hero. Just one year prior, I was diagnosed with PBC. It was a disease unknown to me, but on my crash course to […]

    Barbara B

    When I was asked to write this I was not sure where or how to begin. One thing I do know is how fortunate I have been on this journey for the past seventeen years, starting with my family doctor who noticed an anomaly in the results of my blood tests. When my diagnosis was […]

    Dawn C

    I was diagnosed after testing in Jan/Feb 2014 by a gastroenterologist/hepatologist and was started on the Urso right away. In June 2014 I opted to have the Fibroscan done in Toronto and that indicated I was in stage 3 of liver fibrosis. A year later, this July 2015 I had a repeat and it indicated […]