About Us


The Canadian PBC Society was founded in 2003 by a small group of volunteers in Toronto dedicated to improving the lives of those living with PBC. We now are a national registered charity with more than 1,500 members across the country with regional groups made up of patients and other concerned individuals.

Our mission

  • inform and educate those with PBC and their communities
  • improve early diagnosis
  • provide compassionate support to those suffering from PBC
  • raise funds for research to help find a cure and effective treatment

Our team

We are a totally volunteer, non-profit organization managed by a small executive committee:

  • Gail Wright, President
  • Carla Bidwell, Board Member
  • Debbie Deinhart, Treasurer
  • Mary Ehle, Director
  • Maria Morais, Board Member
  • Nancy Stewart, Member Communications
  • Julie Totten, Board Member

We have relationships with a network of recognized world leaders in the field of PBC research who provide us with up-to-date information about the latest developments in diagnosis and treatment. They include:

  • Aliya Gulamhusein, MD, MPH FRCPC — Assistant Professor and Clinical Investigator, Toronto Centre for Liver Disease, Toronto General Hospital, University Health Network.
  • Gideon Hirschfield, MD, PhD, Lily and Terry Horner Chair in Autoimmune Liver Disease Research at the Toronto Centre for Liver Disease, Toronto General Hospital, University Health Network and Professor of Medicine in the Division of Gastroenterology at the University of Toronto.
  • Andrew L. Mason MBBS, FRCPI, FAASLD — Professor of Medicine, Director, The Applied Genomic Core, Division of Gastroenterology and Hepatology, University of Alberta, Edmonton
  • Magnus McLeod, MD, FRCPD – Assistant Professor, Division of General Internal Medicine, Department of Medicine, Dalhousie University, Halifax, NS
  • Mark G. Swain, MD, MSc, FRCPC, FAASLD — Professor of Medicine, Cal Wenzel Family Foundation Chair in Hepatology; Head, Division of Gastroenterology and Hepatology, University of Calgary; Head, Section of Gastroenterology and Hepatology, Alberta Health Services, Calgary Zone

Our Partners

The Canadian PBC Society has close links with organizations around the world, all working hard to find improved diagnosis and treatment — and ultimately to reach for a cure — for PBC.

These organizations include: