When I was asked to write this I was not sure where or how to begin. One thing I do know is how fortunate I have been on this journey for the past seventeen years, starting with my family doctor who noticed an anomaly in the results of my blood tests. When my diagnosis was confirmed by the gastroenterologist I phoned my closest friend from the parking lot, by the time I was home she had researched primary biliary cirrhosis and found patient support groups and a conference!
After days of dithering I phoned the Canadian support group resulting in meeting with three other patients and as a result part of my life changed! Learning more about primary biliary cirrhosis from the medical profession and online, meeting other patients, becoming a volunteer.
Today, I know the awareness and knowledge I have acquired about primary biliary cirrhosis over the years has helped me to live a full life and to be as active as I wish.
Today, I know that volunteering and helping where I can either by supporting a patient or helping raise funds for research gives me a great deal of personal satisfaction.
Today, I know the friends I have met online and in person over the years in Canada and in England and across the world have enriched my life.