Read the results of our patient survey which was initiated in 2015, with more than 250 PBC patients reporting how PBC affects their daily lives. We worked with a research team from the University of Alberta in Edmonton to look at the data and this report summarizes our findings. Read the published report here.
Thanks to the Gastrointestinal Society in association with the Canadian Society of Intestinal Research for this excellent graphic describing Liver Cirrhosis and providing you with a tool to discuss your Liver with your specialist. Note: There is a spot on the graphic to record your Liver Disease, Liver Stiffness and Fibroscan Score. Download the graphic here.
At the AASLD 2017 Liver Meeting, an abstract was presented, by Dr. van der Meer et al titled “Ursodeoxycholic Acid is Associated with Prolonged Transplant-free Survival in All Patients with Primary Biliary Cholangitis – there is no such thing as non-response” Read an article discussing the abstract in MedPage Today
More exciting news in Liver Research. Engineered liver tissue could help millions of people who suffer from chronic liver disease but don’t qualify for a liver transplant. – Read More
In 2016, we designated the proceeds of the Canadian PBC Society’s signature fundraising event, A Day at the Races, to support PBC education, awareness and research at the Toronto Centre for Liver Disease.
More than $11,000 was raised through the event and these funds have now been committed to a special project that will help enhance and leverage the national PBC patient registry that is being established through CaNAL (Canadian Network for Autoimmune Liver Disease).
The CaNAL registry will make it possible to track and follow-up patient medical history and all relevant clinical events over the long term – and on a national scale. The registry will include both existing and newly-diagnosed patients.
We’re encouraged to see that this national research initiative is intended to achieve the following results for patients who are living with PBC:
Through our support, we are helping to build awareness of the registry among patients at CaNAL sites. This will include opportunities for patients like you to participate in current and future studies, and will help to bring new CaNAL sites into the network.