In Memoriam

It is with great sadness that we announce the passing of Maureen Hill. Many of you will remember Maureen as an active member of our Edmonton group. We will miss Maureen’s warm and caring nature.

Regional Coordinator News

April 28-30, 2017 we held our first Regional Coordinators Meeting in Toronto. It was great to see representatives from across the country gather together to discuss how to better support our growing membership. We discussed how we can better: communicate news; support newly diagnosed; use technology; create awareness among medical community and many more important topics.

 

We’re very pleased to announce that Shauna Vander Well has agreed to act as the Canadian PBC Society Regional Coordinator for all of Alberta. Shauna has been the coordinator for Alberta North for longer than many of us have been involved! She has done an excellent job, providing personal support to PBC patients in the northern part of the province and keeping patients and their families connected through many different educational and information-sharing programs. She has also built many important relationships with the clinical community, including with Dr. Andy Mason.

 

Many PBC patients in what we have historically called “Alberta South” have travelled to the Edmonton area to attend some of the patient meetings and workshops that Shauna has organized. By expanding her role, Shauna will now offer the same personal support, information-sharing and education events to all PBC patients and their families in Alberta. She has our personal thanks for taking on this important and expanded role.

 

If you wish to contact her, she can still be reached at AlbertaN@pbc-society.ca

Creating PBC Awareness through telling our stories



Members of the Canadian PBC Society were interviewed by Post Media for a series of articles about living with PBC. This is the second of four PBC profiles that will appear in the National Post Patient Diaries Series. One of the best ways to raise awareness about PBC is get our stories told, so that people can understand the disease and its impact on our lives.  Read the full story.

International Women’s Day

Canadian PBC Society recognized International Women’s Day at our PBC dinner meeting held on March 8th, 2017 featuring speakers, Dr. Aliyah Gulamhusein and Dr. Bettina Hansen accomplished international women now members of the Toronto Centre for Liver Disease. We were pleased to welcome special guest Carol Roberts from PBCers organization.

Rare Disease Day – Focus on Advocacy

On February 28, 2017, Rare Disease Day, Nancy Stewart and Gail Wright attended a Rare Disease Event at the Ontario Legislature, where we had the opportunity to meet Members of Provincial Parliament and tell them about PBC. A highlight of the day was witnessing MP Michael Harris announce a Rare Disease motion that would help those with rare diseases get access to much needed care and treatment options #TreatRareDisease. We plan to meet with Provincial legislators across Canada beginning this spring.