More exciting news for PBC patients and their families. Arena Pharmaceutical is beginning a proof of concept clinical trial in Australia and New Zealand for Etrasimod. Read more.
March 21-22, 2018 the rare community in Canada came together. Patient Groups joined with Researchers & Clinicians, Government Policy Makers & Health Officials, and Pharma Industry, to discuss challenges and opportunities facing the rare disease community.
On March 20, 2018 members of the Canadian PBC Society meet over lunch and then headed over to the Canadian Parliament to attend question period. We are hoping the government plans for national pharmacare will address the needs of patients with rare diseases.
On March 8, 2018 Dr. Aliya Gulamhusein shared insights on PBC diagnosis, treatment and research, at our PBC dinner meeting. Our very own Nancy Stewart (Board Member extraordinaire) led an informal interview format that allowed everyone to ask many questions. Feedback showed that this format was very popular and we hope to try it again at upcoming meetings.
Attending the European Liver Meeting for the first time! This will be a great opportunity to hear from leading PBC specialists from around the world. Look for our daily updates on facebook and twitter.
Join us from noon – 2pm at Acqua Restaurant. Whether you are newly diagnosed or have had PBC for many years, this will be a wonderful opportunity to meet others with PBC, share experiences, ask questions, give and receive helpful tips. Tickets are complimentary – registration required.Register here
PBC if left untreated may result in the need for a liver transplant.