On June 4, The Canadian PBC Society had a tremendous day at our annual fundraising event ‘A Day at the Races’. We had a great turn out as our members and their friends and families joined us to celebrate and discuss all the accomplishments in the PBC community this year. We ate great food, watched amazing races, enjoyed a wonderful silent auction, and all in good company. We would like to thank all of our donors and sponsors, with whom without this event would not be made possible. The Canadian PBC society is grateful for all our supporters and look forward to ‘A Day at the Races’ next year!
The Canadian PBC Society is excited to share that a new treatment option for PBC is on it’s way, thanks to the recent Canadian approval of Ocaliva , otherwise known as obeticholic acid or OCA. According to a recent release by Intercept Pharmaceuticals, Health Canada has issued a conditional Notice of Compliance for Ocaliva, which is indicated for the treatment of PBC, in combination with URSO, or as monotherapy for those who cannot tolerate URSO.
This is the first new treatment for PBC in 20 years. “I’m thrilled that another treatment has finally been approved. I have spoken to so many patients that have been waiting for other treatments to become available because URSO isn’t working for them,” said Gail Wright, Canadian PBC Society President. “Our community is so energized by this news, and we look forward to our members being able to manage their disease more effectively.”
We anticipate that patients will be able to receive access to OCA in a number of different ways, including private insurance, provincial pharmacare plans and compassionate support programs. We’ll be happy to provide more details as they come available. Read full press release
On June 2, The Canadian PBC Society was fortunate enough travel to Duncan, BC for our PBC Self Management Workshop. Through this workshop we were able to provide and share information about the disease. We were very happy to see the PBC community in Duncan come out to discuss their thoughts and experiences with us. It was an amazing experience and we would like to thank all of those who participated. A special thanks also goes out to Anne Hartford and Fairlie Mendoza for all their work in facilitating the event.
On June 1, The Canadian PBC Society hosted a dinner meeting to discuss the latest in PBC news. We were lucky enough to have Dr. Andrew Mason as our guest speaker, who was able to provide attendees with invaluable information about the disease. The event was a tremendous success in the discussion about PBC and its causes, treatments, and advancements. At the meeting we had the opportunity to present Dr. Mason with the 2017 Outstanding PBC Researcher award and a cheque for $5,000. The Canadian PBC Society looks forward to continuing to work with Dr. Mason on a variety of projects to improve the quality of life for people living with PBC and we are closely following his research endeavors as we strive for a cure.